I initially started this site this past November when I was diagnosed with Stage 3 Burkitt's Lymphoma. I used it as a site where my friends/family could follow my treatment, my good days and bad. The road was rough and I am thankful to be here continuing to write about my experiences.
A PET/CT scan in February changed my life and showed that the chemo was successful. I am currently in remission. My most recent scan showed I still have three enlarged lymph nodes that we'll keep a close watch on, but I chose to be optimistic.
Throughout the short history of this blog, I've heard from a number of people who had found it through searching the internet for information, much like myself. It made me realize that there aren't enough ways for us to connect to one another and share our experiences. Alert each other during times of need.
I have the most wonderful husband in the world, but unless you've heard those three words firsthand, "You Have Cancer" it's hard to understand how much your fight is an emotional one just as much as a physical one. It changes your life forever.
My vision for the new Cancer is Boring Site is to include community pages to share experiences, resource pages for us to share positive experiences with doctors from around the world and a safe environment to talk openly about your feelings or what you're going through. I'm also going to start doing a series of interviews with other cancer fighters and survivors which I'll feature on the site. It will be a month or two before the new site is ready to launch, but I'm excited about it.
Although I am in remission, I still have good days and bad. I feel my metaport in my chest on a daily basis and it reminds me of the battle I went through not that long ago. I am blessed to have a supportive group of co-workers, friends and family who are always there to lift my spirits. I think going through this experience has made me a bit of an activist in the war against cancer. I hope you'll join me in this journey.
About my blog
I originally created this blog in November 2007 as an online community for my friends and family to stay in touch with me through my fight with Stage 4 Burkitt's Lyphoma, my third fight with HIV related cancer but by far the most aggressive. We all have faced hardships in regards to our health or know someone close to us who has. What came as a result of this site was an outpouring of support and love from those around me and also people who found my site and were going through similar circumstances or knew someone who was. I don't know why I didn't think of this site sooner as both my husband greg and myself work as interactive web producers by day, but it's here now and I've met a number of new friends and created a circle of hope and support for each other and our loved ones. By the end of January 2010, my site will be relaunched to include links to resources, a community board to talk topics out with others in the search for answers, my blog and a bit more about my own history with this disease. I have now fought cancer three times since 1996 and am living proof that you can defy the odds.
Cancer is ugly and is anything but boring. I chose to call my blog cancer is boring because I still have things I want to do in this life. If my battles have taught me anything, it's to love and help each other.
I hope this site reminds you that you are never alone and that resources are out there. I will continue to share information as I receive it on my personal battle. One day at a time, one step at a time, thankful to be alive. .
Monday, September 1, 2008
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